eBook - A Quality Life by June Burdon
Diagnosed with Motor Neurone Disease, June commenced this final challenge - to write her memoirs. Robbed of the ability to speak she started typing a story or two a day. Eighty-six thousand words in all, the keyboard rattled away at the start but finished with single, lonely clicks.
Proceeds from the sale of June's book go to MND research, here's where you can find it:
iBooks via device or iTunes
Amazon via device or Browser
Kobo via device or Browser
MND Australia Research Updates
MND Australia research updates can be downloaded below:
Allied Professionals Forum
The Allied Professionals Forum was held in Chicago on December 4 2012.
MND Week: May 5 - 11, 2013
MND Week is celebrated nationally in the first full week of May every year. MND Associations work together during this week to raise awareness of MND to realise our vision of a world free from MND.
The MND Association of Tasmania depends on volunteers. The Committee is grateful to those people who attend Support Group meetings, support MND Awareness Week, organise fundraising activities and send in donations.
This year, our Button Day is on Wednesday 8th May. We are looking for volunteers to participate in collections and raising awareness on the streets. We also have merchandise boxes (with pens, cornflowers, wrist bands) for placement at businesses and workplaces.
If you would like to assist, please contact Mary Erickson via our email address This e-mail address is being protected from spambots. You need JavaScript enabled to view it. or telephone 1800 806 632 (leave a message for her to phone you).
Please click the logo below for more information:
MND Week Media Releases:
Major breakthrough as researchers discover common cause of all forms of amyotrophic lateral sclerosis
Led by eminent researcher Prof Teepu Siddique this research group describes unique mistakes in a gene called UBQLN2, which codes for a protein called ubiquilin 2, in five families with the inherited form of ALS. This research group also found that this protein is found in both the inherited and sporadic form of MND, which suggest that this finding could be key to finding a new treatment for the disease. Their findings were published in the prestigious Journal Nature.
An overview of the research from the UK MND Research blog
The abstract of the paper published in Nature
Response to press releases and overview from ALS Canada
Check out the video on Fox Chicago News
New MND Australia Ambassador
Senator Guy Barnett has been announced as the ambassador for MND Australia. Read more here.